1) The opportunity to serve another as a caregiver can be a spiritual gift that brings
amazing personal growth. Consider caregiving as a service, not a sacrifice. Think of
yourself as a caregiving angel, not a caregiving martyr. Thinking of your actions as
sacrifice will eventually make you feel resentful, and the one you are caring for feel
guilty.
2) Determine your overall commitment level. Try to decide how much of your time and
energy you can or want to give. How much of your life do you truly want to dedicate to the
healing of another? Its okay to say, "I have to stop here to maintain my mental
and physical well-being." When you know your limits, you can seek other care
alternatives. Then martyrdom, resentment, and abandonment become less likely.
3) Take breaks from caregiving. This is critically important! Get help from friends,
relatives, volunteer organizations, or professional health care service providers to allow
yourself time to regenerate your energy, your commitment, and your own self-fulfillment.
Most primary caregivers find that friends and relatives tend to diminish their caregiving
participation over time, so turn to volunteers and professional home health providers.
Find these services by contacting your cancer treatment center, your local American Cancer
Society office, wellness centers, volunteer organizations, and local social services or
church groups. Look in the business or yellow pages of your telephone directory under
"social services".
4) Encourage independence. Be ever watchful for ways to help your loved one move toward
self-reliance. Its easy to fall into the hero or heroine role. "Let me do that
for you," often denies a person the chance to feel personal power and control of
their healing process. Similarly, dont succumb to requests for services they could
do themselves. This is a disservice to both of you, and does not promote either healing or
a healthy relationship.
5) Seek information to make yourself the best caregiver you can be. Find someone you
can talk to who has gone through (or is currently dealing with) caregiving for the types
of cancer and treatment side effects you are dealing with. Join a caregiver support group,
start one yourself, or search the Internet for caregiver discussion groups specific to the
type of cancer you are facing. For ovarian cancer, try http://www.acor.org
and then click "Mailing Lists" and scroll down to "Ovarian". Cancer
survivor discussion groups are also great places to pick up caregiving tips. On the same
site, scroll down to "Long Term Survivors". To locate local caregiver support
groups, contact your cancer treatment center, the patient resource center of a cancer
treatment facility, or the nearest American Cancer Society branch. If you are not
familiar with using the Internet to search for information, ask a friend, or ask for help
at your local library where Internet access and assistance is often available and free. A
good resource book for caregivers is the Home Care Guide for Cancer edited by Peter
Houts (American College of Physicians, 1994, $29.95)
6) Become as knowledgeable as you can about the type of cancer your loved one has. Read
the basic literature, but consider it only a start. The more you know, the better advocate
you can be in the treatment and healing process. Also, become informed about the various
traditional, complementary, and alternative treatments that are available. To search the
Internet for information, try http://www.webcrawler.com
and then type in a search for "ovarian cancer". Be sure to include the quotation
marks. A few good books on complementary and alternative healing are Cancer: Increasing
Your Odds for Survival by David Bogner, Choices in Healing by Michael Lerner,
and Third Opinion by John M Fink. It is widely believed that those who are intently
involved in their medical care decisions are more likely to survive. Often, this
responsibility to stay informed and to do the searches falls on the caregiver.
7) Learn when to be a coach and when to be a cheerleader. Realize that there are times
for you to express "tough love" and confront healing and relationship issues
with your loved one. At other times, youll need to be completely on their side, in
spite of their short comings. When do you support them, and when do you give them a kick
in the butt to motivate them? This is a tough issue and you can only do your best and
learn from experience.
8) Find a time and a method for conflict resolution. Often stresses and tensions build
up between the caregiver and the one receiving care, so it is important to have an open
and ongoing communication about each others frustrations. Be honest, but gentle and
empathetic. Also, pick a time when the other person is feeling strong enough to face the
issues. If your attempts at self-resolution fail, get professional counseling.
Preventative counseling is another approach that works well. You know cancer and its
treatment will cause stress in your life and between the two of you. Get counseling before
the conflict happens, so you can better deal with defusing it. Ask your local cancer
sources to refer you to a good psychologist who has experience with clients who have
cancer.
9) As caregiver, learn to be a good patient advocate. Mistakes will be made by
health care professionals as you go through a lengthy treatment process. Be alert and
assertivebut not offensivewhen being a patient advocate. For example, if
someone starts changing a dressing without washing their hands, politely remind them that
the person they are helping had chemotherapy and has a suppressed immune system. In the
hospital, and with professional home health care personnel, you may want to keep you own
chart to document that what is supposed to be done, is being done. Be there, observing the
care, treatments, and medical procedures. And be bold in advocacy, even for yourself. For
instance, you might request a second bed be put in the room for you when you are staying
long hours or overnight at hospitals.
10) Most importantly, be demonstrative with your love. Say, "I Love You" in
as many ways as you can, and say it often. Write it in notes and cards, or put it in a
poem. Make it constantly visible. Post it on the bathroom mirror, hang it as a mobile
above the bed. Whatever way you can, express your love. Ask others who care to do
likewise. Love heals.
Copyright © 2000 Jim Acee and CONVERSATIONS!, (Permission
is given to make personal copies or copies for free distribution to cancer
fighters.) Available on the web at: http://www.ovarian-news.org
under "10 Tips Series for Coping by Jim Acee."
The National Family Caregivers Association is a group dedicated to making life better
for family caregivers. There is some information on their web site http://www.nfcacares.org Call 800-896-3650 or
e-mail info@nfcacares.org